RESOURCES FOR FAMILIES


EDUCATIONAL RESOURCES:

  • NADD 2008 Conference Education and Training Session Dual Diagnosis Education and Training in Ontario by Jo Anne Nugent, EdD and Susan Morris, RSW. 65 page PDF
  • Atlas – Global resources for persons with intellectual disabilities. 2007. World Health Organization (WHO).
  • “Primary care of adults with developmental disabilities – Canadian consensus guidelines” by Sullivan, William F; Berg, Joseph M; Bradley, Elspeth; Cheetham, Tom; Denton, Richard; Heng, John; Hennen, Brian; et al.(May 2011). Canadian Family Physician; 57(5):541-553. Includes Behavioural and Mental Health Guidelines.
  • “Could This Happen To You” Prepared by the New York State Commission on Quality of Care. Click on link to “Could This Happen to You.” A teaching tool intended primarily for direct care staff. The objective of the series is to prevent mishaps in mental hygiene facilities/programs by challenging staff, sparking reflection and discussion about policies and practices, with the need to clarify to revise these to reduce the likelihood of similar incidents. Utilizing case studies, it promotes quick reading and easy access for both direct care and management staff to review their own operations.
  • Developmental Disabilities Division, Western University - Dual Diagnosis Resources
  • Developmentally Disabled Persons with Sexual Behavior Problems (2 Ed): Treatment, Management and Supervision by Gerry D. Blasingame, MA. Wood ‘N’ Barnes; Oct 3 2005. ISBN: 978-1885473738.
  • Diagnostic Manual – Intellectual Disability (DM-ID): A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability. (2007). Fletcher, R; Loschen, E; Stavrakaki, C; First, M. (Eds.). Kingston, NY: NADD Press. The National Association for the Dually Diagnosed (NADD), in association with the American Psychiatric Association (APA), developed a Manual that is designed to be an adaptation of the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition – Text Revision (DSM-IV-TR).
  • Diagnostic Manual– Intellectual Disability (DM-ID): A Clinical Guide for Diagnosis of Mental Disorders in Persons with Intellectual Disability. (2007). Fletcher, R; Loschen, E; Stavrakaki, C; First, M. (Eds.). Kingston, NY: NADD Press. A shorter volume, has been abridged for clinical usefulness. It focuses on issues related to diagnosis in people with ID, the limitations in applying DSM-IV-TR criteria to people with ID, and adaptation of the diagnostic criteria.
  • Down Syndrome Research Foundation Medical and health information on Down’s syndrome.
  • Dual Diagnosis Community of Practice News, December 2005, Volume 1, Issue 1 Team based learning and education through videoconferencing for clinicians representing dual diagnosis programs. Chair, Facilitator: Debbie Champ, RN. Ottawa: 613-722-6521, ext. 7136.
  • Dual Diagnosis: An Introduction to the Mental Health Needs of Persons with Developmental Disabilities Double Diagnostic: Introduction aux besoins en santé mentale des personnes présentant une déficience de développement This book offers new insights from research and practice in the field of dual diagnosis. It is a comprehensive text designed to update our knowledge and understanding concerning mental health aspects in persons with developmental disabilities. It is essential that persons who work in this field have access to the latest information and training so they can provide the most effective service. This book is designed for that purpose. Please see the Publications link at the top of the page to order or access this book.
  • Dual Diagnosis online course This course comprises the first four chapters of NADD Ontario’s text Dual Diagnosis: An introduction to the mental health needs of persons with developmental disabilities. Click here for pdf flyer that provides a course description as well as information on who should take this course and why. Offered through the Community Networks of Specialized Care North.
  • Dual Diagnosis Resource Manual for Direct Support Professionals menu
  • Direct link to 338 page Manual. December 2011. Southern Network of Specialized Care.
  • Dysphagia Resource Center Resources for swallowing and swallowing disorders.
  • The Estia Centre is a training, research and development resource, with a Publications link, for those who support individuals with developmental disabilities or dual diagnosis. It is a UK site so note that the term learning disabilities is used to connote developmental disabilities.
  • A Handbook on Dual Diagnosis: Supporting People with a Developmental Disability and a Mental Health Problem, 3rd edition, 2005 by Jo Anne Nugent. This popular Handbook has recently been updated to include the most current information on dual diagnosis. Designed as a basic introduction to dual diagnosis for staff, post secondary students, and families, it covers the topics of diagnosis, prevalence, predisposition, pharmacology, and therapy. Also reviewed are 7 major mental illnesses and how these present in persons with a developmental disability. The final chapters provide a comprehensive approach to assessment with forms for data collection, planning, and consultation, plus a section on how to distinguish between mental illnesses and behavioural issues. The Handbook is currently being used as a textbook in 7 Ontario community colleges. Purchasers can request a free CD which is appropriate for educators and trainers. ISBN 0-9738455-0-3. Price: $40.00 plus $3.00 shipping. A quantity discount is available for purchases of 10 or more books. To order please contact Jo Anne Nugent at 905-891-1790 or jnugent@nugenttraining.com
  • Health Evidence Bulletins Wales Learning Disabilities, a.k.a. intellectual/developmental disabilities. On epidemiology, risk factors, prevention, behavioural disturbance, etc.
  • Improving Health Outcomes for Children and Youth with Developmental Disabilities: A literature review in the health status of children and youth with developmental disabilities within a population health framework was created by First Leadership Limited’s Rae Roebuck, Marion Paquet, & Judy Coultes-Macleod on behalf of Surrey Place Centre, Great Lakes Society, Developmental Services of Leeds and Grenville and Ottawa Children’s Treatment Centre. It is an important 60-page document, especially for pediatricians and other children’s physicians. If you are interested in receiving a hard copy version, e-mail Vaso Charitsis, Communications Officer at Surrey Place, at Vaso.Charitsis@SurreyPlace.on.ca with your mailing information. Please note: this version of the document will be updated in early September with a version that will include an Executive Summary and a Summary of discussions from the May 2008 Symposium. If you would like to receive a notice of this update, contact Vaso.
  • The International Certificate Programme in Dual Diagnosis Intensive training courses in habilitative mental health for persons with developmental disabilities. A certificate programme offered by Brock University, St. Catharines, Ontario, Canada in association with Niagara University, Lewiston, New York, USA and the NADD (National Association for the Dually Diagnosed). Courses are offered in June each year. Contact email: dualdiagnosis@brocku.ca
  • Journal of Mental Health Research in Developmental Disabilities The official publication of the National Association for the Dually Diagnosed (NADD) is an interdisciplinary research journal that reports original scientific and scholarly contributions to advance knowledge about mental health issues among persons with intellectual disabilities and related developmental disabilities, especially autism spectrum disorders and genetic phenotypes. Begins publication in 2008. The Dual Diagnosis Implementation Committee of Toronto, Education Task Group with representation from developmental, mental health, colleges and university sectors has developed a Knowledge and Skills Self Assessment Tool for Dual Diagnosis. The tool can be used by providers across the sectors to evaluate their skills. The tool was piloted at the Dual Diagnosis Cross Sector Front Line Staff Forum last March and indivudually by mental health and developmental service agencies in Toronto. It has been found useful for personal self-assessment, group assessment and/or to support pre and post evaluation of training programs. Questions cover areas related to current level of knowledge (acquired through education, experience, observation and supervision) and skill (application of knowledge/demonstrated ability in practice) with individuals with a developmental disability and mental health needs (i.e. dual diagnosis). Topic areas include developmental disability, mental health, assessment and intervention strategies. For a summary of the pilot results and/or copies of the tool contact susan_morris@camh.net. The Dual Diagnosis Program at the Centre for Addicition and Mental Health will also compile the results in an Access file for your group.
  • Ontario Association of Behaviour Analysis (ONTABA) Demonstrates leadership, knowledge, and innovation in education, training, and research for the ethical and effective application of behaviour analysis. Information, resources, discussion groups, etc.
  • Oral Care Training Programs for Direct Care Staff available through Specialized Care Co. along with other products.
  • Respite Worker Training Course An open-entry, self-paced online course designed to prepare individuals to work in respite support situations. Respite support, having someone temporarily fill in as care giver, allows primary care givers to rest and recharge their batteries.

Course Outline Welcome and Introduction Module 1: The World of Respite Support: An Overview Module 2: People You Will Support Module 3: How to Support a Person in a Meaningful Life Module 4: Communication Module 5: Boundaries Module 6: Personal Care Module 7: Creating a Positive Environment Module 8: Confidentiality Module 9: Health and Safety Module 10: Abuse Module 11: Closure Module 12: Quiz and Summary Summary Learning Objectives By the end of this course, you will be able to: – Describe the role of a respite support provider - Support a person in a “meaningful life” - Deploy active listening skills for effective communication - Define clear boundaries of what should and should not be expected of a respite support provider - Create a positive environment to handle challenging respite support situations - Implement good health and safety practices in respite support situations  - Recognize signs of abuse and know the proper procedures to follow in such cases - Properly bring closure to a respite support relationship

  • Successfully Supporting People With Prader-Willi Syndrome: A Handbook for Professionals order form Written by Jo Anne Nugent, Nugent Training and Consulting Services The Handbook for Professionals provides practical information about best practices in supporting people with PWS. The primary focus is on staff who work on a day-today basis with people with PWS, though the information can also be helpful for families and other professionals.

Contents: 1. An overview of Prader-Willi Syndrome 2. Characteristics of PWS 3. Service delivery: Philosophy and General Guidelines for Practise 4. Weight Control: Food and Exercise 5. Behavioural Strategies 6. Early Intervention 7. The School Year 8. Residential Services 9. Vocational Programs and Day Activities 10. Staff Training 11. What Does the Future Hold? Available for purchase from Ontario Prader Willi Syndrome Association (for $26.00), 2788 Bathurst Street, Suite 303, Toronto, Ontario, M6B 3A3; Tel: 416/481/8657; Web: www.pwsnetwork.ca; Email: info@pwsnetwork.ca


MISCELLANEOUS RESOURCES:

  • Canadian Collaborative Mental Health Initiative The goal of the Canadian Collaborative Mental Health Initiative (CCMHI) was to improve the mental health and well-being of Canadians by increasing collaboration among health care providers, consumers, families and caregivers – so that Canadians in need of mental health care services, as well as their caregivers and families, would have improved access to mental health care prevention, promotion and services through their primary health care provider.
  • DrugWatch provides up-to-date information on the side effects of common prescription and over-the-counter medications.
  • Income Security Advocacy Centre The Income Security Advocacy Centre works with and on behalf of low income communities in Ontario to address issues of income security and poverty.
  • The Ontario Health Promotion E-mail Bulletin (OHPE) A weekly newsletter for people interested in health promotion produced by the Ontario Prevention Clearinghouse and the Health Communication Unit. Provides information on workshops, conferences, job postings, projects, issues and resources. The July 2003 publication focused on decreasing barriers faced by people with disabilities.

ARCHIVES: