Dual Diagnosis Links
University of Alberta J.P. Das Developmental Disabilities Centre Informative site with good information on DD, disability and violence, and human ethics. Links to DD Bulletin and the Newsletter for Ethics, with large annotated links relevant to Developmental Disabilities. Affiliated with the Faculty of Education.
Australian Family and Disability Studies Research Collaboration The team of multidisciplinary professionals are committed to identifying, promoting and addressing the issues faced by families where a parent or child has a disability.
Centre for Addiction and Mental HealthThe Centre for Addiction and Mental Health is a public hospital providing direct patient care for people with mental health and addiction problems. Dual Diagnosis Program Operates both an inpatient unit and community based services. It is a specialized program for individuals with a developmental disability and emotional, behavioural or psychiatric difficulties, their families and care providers.
Community Networks of Specialized Care On May 18, 2005, as part of the transformation of developmental services, the Ministry of Community and Social Services (MCSS) announced that four networks of specialized care would be established across the province. The purpose of the Networks is to enhance service to adults with a developmental disability who need specialized care for co-existing mental health and or/ behavioural issues.
COTA Health Comprehensive rehabilitation and mental health services. A Toronto based agency that serves individuals with developmental disabilities and dual diagnosis.
University of Western Ontario, Department of Psychiatry, Developmental Disabilities Division (DDD) An extremely informative, timely site with extensive categorized links to health and mental health websites, curriculum, and journals. Provides description of training program, philosophy and curriculum for medical undergraduates in developmental disabilities, and upcoming conferences. Access to the Clinical Bulletin and newsletters.
- Ministry of Community and Social Services – Developmental Services
- July 5, 2007 Letter to the Minister of Health re: Canadian Mental Health Commission and Citizens Living With Developmental Disabilities and Dual Diagnosis (6 page PDF)
- January 17, 2007 Letter from the Ministry of Health re: Canadian Mental Health Commission and Citizens Living With Developmental Disabilities and Dual Diagnosis (1 page PDF)
International Association for the Scientific Study of Intellectual Disabilities (IASSID)
Newsletter, 2 special interest groups on Health and Aging with Intellectual Disabilities, best practice guidelines (i.e. Alzheimer and dementia related disorders), as well as links to the Journal of Intellectual Disability Research.
University Affiliated Programs Authorized by the Developmental Disability Assistance and Bill of Rights Act, UAPs are found in every state and territory in the USA. Now called Centers of Excellence in Developmental Disabilities Education, Research and Services, they provide interdisciplinary academic, professional & community training, diagnosis, evaluation and treatment, research and publications. All include a wealth of information on services, training research and relevant weblinks. Some of these programs focus on the need for training in dual diagnosis.
- California: 1) Tarjan Center at UCLA and 2) USC University Center for Excellence in Developmental Disabilities (Childrens Hospital Los Angeles)
- Waisman Centre The Waisman Center is dedicated to the advancement of knowledge about human development and developmental disabilities throughout the lifespan. Site includes detailed information on services, programs, training opportunities, information for families as well as an extensive listing of 48 websites related to cognitive and evelopmental disability resources.
- Institute on Community Integration A UAP at the University of Minnesota dedicated to improving community service and social supports to persons with a DD and their family.
- Nisonger Center One of first UAPs to offer training in dual diagnosis, active in setting guidelines for psychopharmacology in MR/DD.
www.elfrida.com The Elfrida Society website from the UK. Click on publications for a wide range of health pamplets written in accessible language.
Family Village For families and clinicians: A well organized resource site with a variety of areas to choose from on genetic syndromes, medical, educational, and vocational issues. Operated by the Waisman Centre at the University of Wisconsin.
National Association for the Dually Diagnosed (NADD) A not-for-profit (501C3) membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. The key source of information, training materials and conferences.
Aging Issues in MR and DD
Centre for Aging Persons with Developmental Disabilities (CAPDD) The University Affiliated Program of Indiana Focus on biopsychosocial changes associated with individuals. Includes training materials and best practice research investigating the efficacy of training approaches.
Ontario Partnership on Aging and Developmental Disabilities A partnership of service providers working in long term care and developmental disabilities, provincial associations, planning bodies, educational institutions and local initiatives. Dedicated to ensuring that older adults with developmental disabilities enjoy the same rights and opportunities to serve and support as every senior in Ontario.
Rehabilitation Research and Training Center on Aging with Developmental Disabilities,
University of Illinois at Chicago, College of Applied Health Sciences,
Department of Disability and Human Development.
Adults with Autism Spectrum Disorder, Ministry of Children and Family Development, Government of British Columbia. Includes government policy and procedures for autism services, a parent’s handbook to services and other interesting links.
Autism Ontario Source of information and referral on autism and one of the largest collective voices representing the autism community. Members are connected through a volunteer network of Chapters throughout the Province of Ontario.
Center for the Study of Autism Provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Much of the research is in collaboration with the Autism Research Institute in San Diego, California.
Geneva Centre For Autism Geneva Centre for autism website with links to resources, National Autism Society and Parent Books.
Kerry’s Place Autism Services Services, links, etc.
National Autistic Society, UK
Includes a comprehensive publication list on autism.
Canadian Association for Williams Syndrome Website including information on this condition, diagnosis, teaching strategies and the association. Access to message board and listserv/chat for parents.
Canadian Down Syndrome Society National organization whose mission is to enhance the quality of life for all individuals who have Down syndrome through advocacy, education and providing information. Includes detailed information on current events, support services, access to newsletter and message board. Has a great searchable index of topics, links also listed by province.
Teaching Students with Fetal Alcohol Syndrome/Effects A resource guide for teachers. British Columbia Ministry of Education (1996)
Fetal Alcohol Spectrum Disorder (FASD) Ontario News edited by the Best Start Resource Centre and supported by the Public Health Agency of Canada, Ontario Region. Developed by FASD Stakeholders for Ontario, intended to help people in Ontario work together to address FASD.
FRAXA Research Foundation of Canada A non-profit organization of family members, friends and professionals interested in Fragile X syndrome. Includes useful information on symptoms, causes, treatment, a medication guide and information about training opportunities.
Ontario Prader-Willi Syndrome Association Non-profit, charity designed to enhance the quality of life for individuals with Prader-Willi Syndrome. Includes information on the characteristics of the syndrome, the annual conference, quarterly newsletter, limited links, publication materials and current news events.
Relevant Developmental Disability Agencies and Associations
All Together Now – A provinical network on developmental services improving the lives of Ontarians with a developmental disability.
American Association on Intellectual and Developmental Disabilities (AAIDD) Formerly American Association on Mental Retardation (AAMR). Oldest and largest interdisciplinary organization of professionals. Many resources listed and publications available.
Ontario Agencies Supporting Individuals with Special Needs (OASIS) Has a resource library that includes best practices, a listserv for members, and newsletter. Locally relevant and useful links including dual diagnosis, specific syndromes, products, and publications.
ARC National Association on Mental Retardation
Ontario Association on Developmental Disability (OADD) Professional organization of people working and studying in the field of developmental disabilities, throughout Ontario.
Surrey Place Centre Offers diagnostic and counselling services for children, youth, adults and seniors with developmental disabilities, their families and support teams.
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